FAQS
Clear answers about Pediatric Palliative Care and our mission.
At Fundación porqueViven we work to give visibility to Paediatric Palliative Care (PPC) and provide comprehensive care to its patients. For this reason, we invite you to discover here the keys to our work and the pioneering project we are developing, the Comprehensive Paediatric Palliative Care Centre (CAPPI), which will open its doors in Madrid in 2026.
At Fundación porqueViven we work to give visibility to Paediatric Palliative Care (PPC) and provide comprehensive care to its patients. For this reason, we invite you to discover here the keys to our work and the pioneering project we are developing, the Comprehensive Paediatric Palliative Care Centre (CAPPI), which will open its doors in Madrid in 2026.
What is Pediatric Palliative Care (PPC)?
Pediatric palliative care is a comprehensive approach that addresses the physical, emotional, psychological, social, and spiritual needs of children with life-limiting conditions and their families. Our goal is to fill their lives with LIFE.
How is Pediatric Palliative Care different from adult palliative care?
Paediatric Palliative Care Pediatric palliative care often spans many years, and must adapt to the ongoing physical, emotional, and psychological development of the child. It is a dynamic, evolving process.
How many children need PPC in Spain?
About 60,000 families in Spain need pediatric palliative care, yet only 15% currently receive adequate support. In Madrid, approximately 3,500 families need it, with coverage reaching 30%.
What is the scope of Fundación porqueViven?
We currently support families in the Madrid region and Aragón, and collaborate nationally to promote PPC through training, advocacy, and coordination with other entities and volunteers.
What services does Fundación porqueViven provide?
We currently support families in the Madrid region and Aragón, and collaborate nationally to promote PPC through training, advocacy, and coordination with other entities and volunteers.
What is your relationship with public health services?
At Fundación porqueViven We ensure the home can remain the primary place of care, providing psychological, and spiritual support, therapies, respite care, financial assistance, orthopedic equipment, and more.
Are the children you support also treated in the public health system?
Yes, always. Families are referred to us through their public paediatric palliative care teams at the Fundación porqueViven
Are you part of public PPC teams, like the UAIPP at Hospital Niño Jesús in Madrid?
No, the professionals of the Fundación porqueViven coordinate closely with public teams (such as the UAIPP) to maximise the use of resources and improve care for families.
Do you only serve families from Hospital Niño Jesús (Madrid) or Miguel Servet (Aragón)?
No. Any patient receiving Paediatric Palliative Care can be cared for by Fundación porqueViven. We coordinate closely with public teams (like the UAIPP) to maximize resource use and improve family care.
Are public healthcare resources insufficient?
Public teams provide excellent care — especially in Madrid, with 24/7 coverage. However, family needs go beyond standard services. We provide complementary resources not included in the usual public PPC portfolio.
What is the CAPPIPPCC)?
CAPPI(PPCC) will be Spain’s first comprehensive Pediatric Palliative Care Center, opening in Madrid in 2026. It will complement public healthcare with additional resources for respite care, therapies, and family support.
What services will CAPPI(PPCC) offer?
- Respite rooms for children
- Day Center with 24 beds
- Integration classrooms
- Therapy areas
- Training center for professionals
- End-of-life care apartments
How many children will CAPPI (PPCC)serve?
Initially, CAPPI(PPCC) will accommodate 30 children for respite care, expandable to 60 if needed, plus 24 day center beds and 4 family apartments for end-of-life care.
When will CAPPI(PPCC) open?
The center is scheduled to begin operation in mid-2026, supporting and complementing the public healthcare system in Madrid.
How can I support Fundación porqueViven?
You can help by:
- Becoming a volunteer
- Making a donation
- Spreading awareness
Your contribution helps us improve the lives of children in palliative care and support their families every step of the way.
What is respite care?
Respite care provides temporary rest for primary caregivers, ensuring they can care for their own well-being while the child continues receiving expert attention.
What are the benefits of respite programs?
These programs help reduce stress and emotional fatigue, prevent caregiver burnout, and ensure families can maintain long-term balance and quality of care.
Help Us Change Lives
At porqueViven, we work to improve the lives of children who cannot be cured — and of the families who love them.
But we can’t do it alone. Your help makes the difference: donate, spread the word, or get involved. Together, we can bring the care, dignity, and hope every child deserves.
Let’s fill their lives with life.
At porqueViven, we work to improve the lives of children who cannot be cured — and of the families who love them.
But we can’t do it alone. Your help makes the difference: donate, spread the word, or get involved. Together, we can bring the care, dignity, and hope every child deserves.
Let’s fill their lives with life.
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